I didn't write this one, but everyone should read it once. It is priceless.
by Emily Perl Kingsley, 1987
I am
often asked to describe the experience of raising a child with a disability, to
try to help people who have not shared that unique experience to understand it,
to imagine how it would feel. It's like this:
When you're going to have a baby, it's like planning a
fabulous vacation trip--to Italy. You buy a bunch of guide books and make your
wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice.
You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally
arrives. You pack your bags and off you go. Several hours later, the plane
lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean
Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've
dreamed of going to Italy."
But there's been a change in the flight plan. They've
landed in Holland and there you must stay. The important thing is that they
haven't taken you to a horrible, disgusting, filthy place, full of pestilence,
famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must
learn a whole new language. And you will meet a whole new group of people you
would never have met. It's just a different place. It's slower-paced than
Italy, less flashy than Italy. But after you've been there for a while and you
catch your breath, you look around... and you begin to notice that Holland has
windmills...and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy,
and they're all bragging about what a wonderful time they had there. And for
the rest of your life, you will say "Yes, that's where I was supposed to
go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away,
because the loss of that dream is a very, very significant loss.
But... if you spend your life mourning the fact that you
didn't get to Italy, you may never be free to enjoy the very special, the very
lovely things... about Holland.
“I don’t know why
they say, ‘You have a baby.’
The baby has you.”
~ Gallagher
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